participant confidentiality
Failing to respect the right of individuals to have their personal data treated in confidence; failing to obtain explicit consent from individuals to publish personal information obtained in the course of research or treatment
Search results
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Pedigree descriptions: genotyping results for family members
09-17 We received a paper which describes genotyping results from a large number of individuals (>50) from five unrelated families, in which family members had various blood and liver conditions. On submission we noted that the paper ...
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Confidentiality and consent in case reports
08-22 We would appreciate COPE Forum’s advice with regard to consent and confidentiality in the publication of case histories. ...
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Short case reports without formal consent
08-02 A manuscript was submitted about prenatal diagnosis of a specific cardiac disease. Short case reports of four babies who died were included. Although there are no names, we believe that there are sufficient details about the ...
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Confidentiality and privacy issue
07-13 A manuscript was submitted from UK authors. The study was a case series of infants with a particular condition. A table in the manuscript contains descriptive data which are critically important for the readers with respect to ...
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Consideration of publishing raw data
06-25 Our journal has received a submission regarding clinical trial results. The authors wish to include the “raw data” as an appendix to the manuscript. The study was completed several years ago and was controversial at the time. The ...
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Interactive case report of a patient with ongoing health problems
04-31 The case of a patient with unresolved upper abdominal pain and weight loss was written up and submitted by her family doctor to a journal that publishes interactive case reports. The intention was to present it as an unfolding ...